I rarely post pictures of Jonathan (who now goes by JON at school, his nickname at home is "The J man"). It's not because I don't love him. It's beacuse he is THE HARDEST PERSON in the universe to photograph. Especially when you're his mother.
We met his new doctor today. His other doctor, a Navy Commander, PCS'ed to Japan. Although we're sorry to see him go, it gives us the chance to meet a new doctor and increase awareness on Fragile X. I don't think this doctor has ever knowingly treated a patient with a Fragile x diagnosis, so I am looking forward to sharing some info with him. SO far, first impressions and all, I like the new doctor. He's a straight shooter and I like that.
Now feast your eyes on my handsome guy. Who is now 19. I didn't blog about his birthday. I don't know about you (some of you who read here also have kids with diagnoses) but birthday and typical BIG holdays like birthdays are hard on me. It's a brutal reminder of where he's not. Although I love Jonathan with my whole heart, I still grieve. You never really stop. You just get used to it. And time moves on...
But isn't he handsome? Man, it makes me feel old looking at him. I remember the day he was born, his first steps, how he got that scar over his eye, the day of his diagnosis, and I have loved him every single day of his life. He and I have been through some hard times together, but we've survived and flourished. I am blessed to be Mom to the J man. Fragile X and all its scars.