We're back from our vacation. We lasted LESS THAN 24 hours.
There were many factors that influenced our decision to come home early: the non-stop, unabating rain, for starters. Jonathan's mood (and potential to meltdown) was the big reason. The wee kids were active (loud) and aggravating Jonathan's already delicate mood. Greg and I cut our losses and headed home. Luckily, we were close to home....
Sometimes, fragile x just sucks.
Those of you who read my blog who DON'T have kids with special needs might not understand this but it's HARD sometimes. I KNOW he can't help most of what affects him. Right now, it's his meds: the cocktail was working until about 9-12 months ago and for some reason, his appetite just went berserk. Like he's not happy unless he's eating 24-7. I am not kidding. We're talking a 50# weight gain. On a frame that is 5'9", he's just shy of 200#. And he gets MAD if he doesn't have food. I mean REALLY mad. I feed him healthy foods and decent portions. It's TOUGH wen the meds are as bad as the symptoms sometimes...
It's such a delicate balance.
And it wears on me sometimes.
Like when I am trying to have a vacation.....
Would I cure Jonathan, if I could? Probably. I am one of those who's concentratng more of my energy on treatment. I applaud those who are searching for a cure, but for now, I just need ideas on how to make it through the day (or a vacation).
We're adjusting Jonathn's meds and HOPING that the adjustments over the next weeks will dim (ad/or eliminate) his roaring, insatiable appetite.
If you're praying type, please say a prayer for Jonathan.
And for me, too. My husband will be leaving soon for military training. He'll be gone while we deal with the med issues. And also school is about to start. And I have a million business things to do...
It's like The Perfect Storm. (I say that smiling.)
The day's not all bad. I had a great dinner. A friend stopped by. He's in love and oh so happy. I won't name him here but let's just say his last girlfriend was a bit of a psycho and he's SO much happier now.
Tomorrow is a different day.
And I am sooooo glad.