Today, I feel alone. Isolated. Out-numbered.
I have lived with fragile x for almost 2 decades, knowingly.
Life with Jonathan has never been boring.
When he was little, his differences were cute, almost charming.
My sisters used to pick on him, on me, about his echolalia, his perseverations.
It was cute then.
Not so cute now.
I've always tried to be the bext Momma I could be.
In the past year, it's been the biggest challenge I've ever faced.
Today, as I sit across the table from hostile administrators, I will feel alone.
I'll have my husband by my side, but for many years, it was just me and Jonathan.
How do you help people to see your child, a young MAN, as a human being, with feelings, and a heart? With thoughts all his own? With problems, anxieties and pains? Instead, they see the sum of his parts.
So today, I'll try and help them to see more than that.